Being a teenager is a fun, but it can be hard work too. Andrew Perry, a 14-year-old born with Treacher Collins and Bilateral Microtia and Atresia, has conductive hearing loss in both ears making participation, working in groups of students and hearing class lectures even more draining than it can already be.
“Straining to hear can make someone with a hearing loss tired throughout the day,” says Melissa Tumblin, Founder of Ear Community. The background noise common in rooms full of students made concentration difficult for Andrew. Clyde, Andrew’s father, said that Andrew’s academic performance had declined significantly, and he believed it was because of the difficulty of hearing and following instructions in the classroom.
Here’s how an Audiologist went the extra mile for Andrew, as first told on Ear Community.
Today, we would like to share a special story. After years of confusion and frustration, Camilla was able to connect with peers and mentors–including our friend Justin Bays–who helped lead her to the hearing device that’s right for her– all thanks to the incredible efforts of Ear Community.
Camilla was Ear Community’s very first college scholarship recipient. Camilla is now working on her graduate degree, and she’s a wonderful single mom too! Camilla’s family are long-time supporters of Ear Community. Camilla is also a member of the Hearing Loss Association of America (HLAA).
There are many amazing aspects of life that we often take for granted. Sometimes, we don’t realize how important and amazing our basic senses are until we no longer have their full ability.
Earlier this year at the Oticon Medical Patient Advocacy Workshop, Ponto users and parents shared the sentiment that it’s hard for people who have never experienced hearing loss to understand its impact.
That’s why we handed over the keys. We’ve handed our Instagram account over to Ponto users to help others understand why #SoundMatters from the perspective of those who experience it every day.
Meet Vishal, a 10-year-old musician with Microtia and Atresia. We first met Vishal when he posted this message on the Oticon Medical Facebook Page:
10 years old – born with Microtia and Aural Atresia.
Student of grade 5.
I grow up in Germany because my Dad has his office out here.
He loves music.
At first he is shocked because his son is born with Microtia.
Then he remembers his conversation with God before I was born.
God was looking for parents for me like the ones I have.
My Dad promised God to be the best Dad ever.
The German Doc told my Dad just after my birth that I would not be able to hear nor speak.
My dad trusts in God and in His ways.
I get a Softband Oticon.
I win a first prize in a music competition in Germany!
Here’s Vishal to share a bit of his musical journey.
A couple of months ago we held the first ever Oticon Medical Patient Advocacy Workshop. While events in the past have focused on gathering and getting to know each other, this event focused on bettering the experience for those who need or will need bone anchored hearing systems in the future.
The top concern included education for those who were experiencing the world of bone anchored hearing for the fist time. Ponto wearers and families shared that they felt frustrated at the beginning of their journey, because they didn’t get all of the information they needed outright— it took research, time and, in many cases, probing to get answers from professionals. The statement “I wish I would have known what questions to ask” is something that we heard from the group more than once. Kelley Dwyer, an Audiologist who joined our group along with her brother Derek, who got his Ponto Plus and the Ponto Streamer earlier this year, also mentioned that it’d be helpful for Audiologists if patients had more access to information and a set of questions too.
Many people in the group mentioned that they didn’t know that there were options when it came to choosing a bone anchored hearing device. For some, it took years to make the realization and in some cases, it lead to surgery for a new abutment to make a switch.
We’re working to fulfill the needs we uncovered and develop the ideas the group had from the workshop. Today, we’re asking for your help to bring one of those ideas to life.
Educating teachers and children on the importance of using FM systems in the classroom came up many times at our Patient Advocacy Workshop. Here’s a great video by St. John’s Medical Center that does just that. This is a great tool that shows the difference a FM system can make for a child with hearing loss. Share it with your children and their teachers.
Robb Boss believed he was doing “just fine” coping with his conductive hearing loss. A successful oncology sales representative with a leading pharmaceutical company, Robb’s personable and intelligent communication with colleagues and clients has led to much success and satisfaction for the 41-year-old. But, a brief conversation with a co-worker helped Robb see the downside of his untreated unilateral conductive hearing loss and take action.
After “pretending” to hear nearly his whole life, Robb decided that improving his hearing would improve relationships at work and with the people who matter the most– his family. “I was living my life pretending I could hear, Robb says. “It started hindering communication within the family and professionally. We have five girls and they all have tones of voices that I just couldn’t hear at all.”