Being a teenager is a fun, but it can be hard work too. Andrew Perry, a 14-year-old born with Treacher Collins and Bilateral Microtia and Atresia, has conductive hearing loss in both ears making participation, working in groups of students and hearing class lectures even more draining than it can already be.
“Straining to hear can make someone with a hearing loss tired throughout the day,” says Melissa Tumblin, Founder of Ear Community. The background noise common in rooms full of students made concentration difficult for Andrew. Clyde, Andrew’s father, said that Andrew’s academic performance had declined significantly, and he believed it was because of the difficulty of hearing and following instructions in the classroom.
Here’s how an Audiologist went the extra mile for Andrew, as first told on Ear Community.
As Tim recalls, Anthony’s mother, Christina D’Allesandro, reached out to Marvel through their general email. Despite all of the requests that Marvel gets as one of the world’s most prominent entertainment companies with a library of over 8,000 characters, they didn’t take her request lightly.
Bill Rosemann, a Marvel editor, took special notice. He artist Manny Mederos and Trades Department Editor Nelson Ribeiro, sent the D’Allesandro family comic book covers featuring their very own versions of honorary Avenger Blue Ear, inspired by Anthony. Then, Mederos did a team up sketch between Blue Ear and Hawkeye, who suffered hearing loss as an Avenger. This started the life and adventures of Blue Ear, who’s now an official Marvel character and stars in his own one-shot (for now) comic book.
While Marvel works to support as many people as possible, they’d never done it in exactly this way before. For example, Tim mentioned Marvel’s character, Captain Citrus, in support of Florida orange growers and to encourage a healthier diet for children.
Ponto Wearer Kris Siwek Gives— and Gets— the Ultimate Gift
Kris Siwek is a Ponto wearer and advocate that we know well. Kris suddenly lost her hearing after being diagnosed with a tumor at age 29. Kris, pregnant at the time, did intense research to find the best solution for her survival and recovery— from her acoustic neuroma removal to finding the right hearing solution. Kris actively shares her story and advocates for those with acoustic neuromas and hearing loss.
When we spoke with Kris last week, we could see her face light up when she mentioned her donated Ponto would go to a 7-month-old through Ear Community. Heres’ more about that 7-month-old, Clark. As Kris put it, “It’s just so perfect.”
“In April of 2014, Max and Melissa Witt gave birth to a beautiful sweet baby boy named Clark. When Clark was born, he was originally diagnosed with having Goldenhar Syndrome and Hemifacial Microsomia. Clark was also born without his left ear due to having Microtia and a missing ear canal due to having Atresia, resulting in hearing loss,” Melissa Tumblin, Founder of Ear Community writes in the original piece about the story on Ear Community. “Clark’s parents did everything they could to provide him with proper healthcare prenatally. They had level 2 ultrasounds, genetic screenings, even a fetal echocardiogram… However, it wasn’t until Clark was almost 2.5 months old (after birth) when Clark’s doctors discovered that his heart had a double aortic arch. Clark underwent heart surgery at just 5 months of age to fix his heart.” Continue reading →
What would any 6-year-old boy say about being featured in a comic book? “It’s awesome,” said Anthony Smith about being the inspiration for the Marvel superhero “Blue Ear.”
Anthony has been through a winding journey in the quest to help him hear. As part of that journey, Anthony’s mother, Christina D’Allesandro, even helped him become a comic book superhero.
Early on, Anthony realized that other kids his age, and more importantly, superheroes in comic books and on television, didn’t wear “Blue Ears,” the nickname his family gave his hearing device. This made Anthony feel different than other children. His mother, Christina, assured him that superheroes did wear hearing devices too. Although she didn’t know for sure if she could find such superheroes, Christina didn’t stop at just saying they exist.
A few months ago, we first introduced you to Shannon and her daughter Ava. Shannon took the time to tell us about her journey in finding out that Ava had hearing loss and what came after. Today, we’re excited to share another milestone in Shannon and Ava’s lives, as told by Melissa Tumblin, Founder of Ear Community.
Meet Ava Katuszonek, an adorable little three year old girl who was born with Microtia and Atresia of her right ear. Ava is a very happy little girl who enjoys playing with friends and is excited to learn the alphabet and begin reading. However, when Ava was about one year old, her mom, Shannon, began noticing her struggling with her hearing. Ava wasn’t always responding to Shannon’s voice when she would call for her. Two years ago, Ava and her parents, Paul and Shannon, attended an Ear Community Microtia and Atresia picnic in Pleasanton, California where they were given the opportunity to learn more about bone conduction hearing devices. Ava’s parents tried to obtain a BAHA for little Ava as soon as they could, but their insurance plan under Kaiser Permanente denied their coverage for a BAHA. Ava’s mother, Shannon, also did not realize there were many options available on the market for BAHAs. Now knowing this information, Ava’s parents continued appealing with their insurance provider in order to help Ava hear better with a BAHA.
Winslow may only be 7 years old, but he knows what he wants when it comes to his hearing. After trying his options, Winslow chose The Ponto System. This May, Winslow decided he was ready to take the next step and be aided bilaterally. Now, he’ll have not one, but two Pontos.
Here’s Winslow and his mom, Ann, to tell their story.
Would you like to talk to Ann and Winslow or another bone anchored hearing system user? Let us know here. If you’d like to share your story, let us know in the comments below or on Facebook or Twitter.
We’re sharing one of our greatest assets– a list of online bone anchored hearing system forums and user groups. The communities on this list have helped so many, and they’ve helped us connect with you. With so many people looking for communities of others who can help them get answers and support, we’ve now made this list public. Better yet, we’re asking you to help us add to the list and grow it even further. Read on for access and to get the full scoop on how it works.